Day +70: a rough couple of days

Wasn't able to blog last night because Mina Brigitta wouldn't let go of me. She had kind of a tough day: she threw up twice in the morning, and then again at about 10:30. I ended up spending most of the night in the chair with her, except our rickety little chair here isn't nearly as comfortable as the big luxurious black leather chair in Room 739 (it was donated by a family of a former patient). She threw up again this morning, the third day in a row that she's thrown up after her morning dose of cyclosporine. Otherwise she's been pretty listless the last couple of days. She definitely has up moments; yesterday they went for a long walk down Haight Street and into Golden Gate park, and after an hour and a half she still wasn't ready to come in. But she's also had times where she doesn't want to do much of anything.

We think the problem is meds; she hadn't been getting her Kytril because UCSF didn't write for it and the insurance wasn't going to cover that. Looks like that's going to get resolved, and she finally got a dose about 8:30 tonight. Well, wouldn't you know it, about an hour later she was as perky as she's been since the day we came home. She was up drawing babies, then wanted to eat, and was giggling a little bit with Grandma. Hopefully that will continue throughout the night so we can all get some sleep. We'll try giving her some before breakfast tomorrow, to see if that helps keep her cyclorsporine down.

They tested her blood today, and no surprise, her cyclosporine levels were too low, so they're upping the dose until Monday. Her other numbers look very good though. Her platelets were over 100 million/liter, which is higher than they've been since the transplant. Dr. Horn was also very pleased that the rash on her legs seems to be subsiding. Probably the Cellcept kicking in. As always, however, there are some worrying signs. She has some new fingernails growing in, so she's probably going to lose the ones she has. That could just be a reaction to her previous bout of acute GVH, but it could also be a sign of chronic GVH. Also, there was a watery green spot in her poop today. Again, could be a number of things, but could also be related to GVH.