Day +62: new target: Tuesday

Seems I'm not the only one who forgot this weekend is the 4th of July. They told us today we can't go home on Monday, because offsite nursing care won't be available due to the holiday. No big surprise. But they're still shooting for Tuesday, which would be just fine with us. They're planning another dose of Infliximab for Tuesday before we leave the hospital, so we don't have to come back to the clininc on Wednesday. Our first appointment would be the following Wednesday. This is all so far away yet that I don't want to jinx it. But Keri and Lyn are now planning to spend Monday deep-cleaning the flat.

Mina Brigitta's day was similar to the last few. Still not eating or drinking a lot, but active and very communicative. We'll have to give her fluids at night when we go home, and a couple of IV meds as well: gancyclovir (anti-viral) and caspofungin (anti-fungal). She calls me on the phone every day now. It's so fun to pick up the phone and hear her little voice, "Hi!". She had another afternoon with Mom-momma while Keri went to Macy's to pick up new pillows for the house.

Amber babysat Isaac last week and took these great pictures of him: http://eshare.hpphoto.com/start.asp?JobID=7ad2c5c8-04e6-4d86-bcad-ff06af41aacf
. I still have a whole bunch of pictures of Mina to post, and feel bad that I haven't done that. Too bad Amber isn't babysitting Mina these days...