Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Wednesday, June 22, 2005

Day +54: no news is good news

Nothing much new to report. We're still trying to work on getting Mina to eat more, but she's been getting all the nutrition she needs through her IV so she doesn't have much of an appetite. Today they started ramping down her IV nutrition, so we'll see if that makes a difference tomorrow. They've ramped down her steroids as well, from 45 mg/day a couple of weeks ago to 15 mg twice a day now. Tomorrow she'll get another dose of Infliximab, and they'll move her steroids to 25 mg once a day. They want to slowly move it down to 15 mg once a day. The rash on her legs continues to evolve, though it's light and isn't doing much. We're still hoping it's a continued manifestation of the previous issues, and not a sign of chronic GVHD. The rest of her skin looks great. Her hair is starting to grow back slowly, and at least for now it looks dark. It's not too surprising because we always expected her hair to turn dark, and it's not like she's getting any sun. More surprising is that she's sprouting little peach fuzz on her forehead and appears to be growing a dark monobrow. This is probably a temporary effect from some of the drugs she's on.

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