Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Wednesday, June 15, 2005

Day +46: some great news and some not so great news

First the great news: Mina Brigitta's CT scan was totally clean! We knew it was good when they cancelled the broncoscopy (they were planning to put a tube into her lungs to get a sample if they found something there), and then later on both Keri and I got to look at the pictures from the scan. Last week there was a spot on her lower left lung, and some fluid buildup outside of her right lung between the lung and the rib cage that was constricting the lung a little bit. Those were both gone, and the only thing that showed up at all was a little bit of what they think is scar tissue from the RSV infection. Plus, she's feeling great and she hasn't had a fever since Monday! We'll just hope she stays just like this.

The not-so-good news is that she may have another rash developing. She has some very small bumps on her legs and arms that appear to be "evolving". The interesting thing is that the bumps are only in the areas that didn't appear to be affected before. The areas where her skin has peeled from the previous bout are still perfectly clear. Also, they're very small and not evolving very quickly at all. Certainly nothing like last time. The dermatologist was just in at the end of the day, so we haven't heard from the whole team yet what they're planning to do about this, if anything. We've obviously been hoping that the GVHD would stay away, so that they can taper the immuno-suppressive therapy as rapidly as possible. This appears to introduce a new wrinkle, though the low level she's showing now might not be enough to make them change anything.

In the vain hopes of trying to get a good night's sleep last night, I tried Kari's trick of putting her in the chair and myself in the bed. No way. Mina said "Daddy sit dere!", patting the chair with her hand. So she slept curled up on top of me in the cushy chair. Comfy for her, not so much for me. But it was very nice to get to snuggle my girl again after being away for so long.

2 Comments:

  • At 6:08 AM PDT, Anonymous Anonymous said…

    What a team you guys are! I'm happy to hear you are feeling well, Arne, and are able to be back with Mina Brigitta at night. I thank God for all the good news and continue to pray for a complete recovery for Mina Brigitta. Love, Aunt Joan

     
  • At 11:17 AM PDT, Anonymous Anonymous said…

    Good job all of you!!! So happy to hear that the fever is gone and we really hope the new rash will disappear a.s.a.p. Great that you feel better Arne - and if Mina wants you in that chair, you had better stay in that chair :)
    Pia and family

     

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