Day +39: slow progress
Another sleepy day today, but Mina Brigitta definitely had moments of being awake and alert. The first one occurred at 5 AM, when she woke up and asked for "big coke", referring to the Richard Scarry book she was into before the GVH set in. I'd never been so happy to be up at 5 AM. During the day, she even asked to come over to the daybed and sit with Bubba, but her energy waned before Keri and Kari managed to transport her across the room.
Everything else continues to improve. Her skin is slowly peeling and the new skin underneath looks good for the most part, except on her lower arms where the blistering was the worst. The giant blister that covered her entire right heel is just about gone, thankfully without having popped. Yesterday she had some blood in her tears, and the opthamologist said the tissue around her eyes was suffering the same damage as the rest of her skin. He said it won't be a problem as long as there's no major scarring, and today her tears were clear again. The blood in her stool last night didn't come up, so it must not be a major concern. They did schedule a brain MRI for tomorrow to be sure there's no swelling around the brain, but no one's too worried about it based on her alertness today.
Everything else continues to improve. Her skin is slowly peeling and the new skin underneath looks good for the most part, except on her lower arms where the blistering was the worst. The giant blister that covered her entire right heel is just about gone, thankfully without having popped. Yesterday she had some blood in her tears, and the opthamologist said the tissue around her eyes was suffering the same damage as the rest of her skin. He said it won't be a problem as long as there's no major scarring, and today her tears were clear again. The blood in her stool last night didn't come up, so it must not be a major concern. They did schedule a brain MRI for tomorrow to be sure there's no swelling around the brain, but no one's too worried about it based on her alertness today.

5 Comments:
At 8:47 AM PDT,
Anonymous said…
WOW, So happy to hear about this upward trend. Mina is such a spirited little girl, it's very uplifting to know that she is engaging in her world even with all the assults on her body -- thinking of her going for book at 5 am just pleases me so.
Your whole family is doing such an amazing job, during such difficult times. It really sounds as if the worst is over. My thoughts are with you.
Lots of love,
Stacey
At 9:11 AM PDT,
Anonymous said…
So thrilled to hear about the progress, albeit slow! I can envision sweet Mina waking Dadda up and asking for "Big Coke". What an amazingly resilient child, and a wonderfully loving and giving and family. You are all an example of unselfish, generous love. May all that love be given back to you tenfold!
Continuing to pray for God's blessing and healing. Much love, Aunt Paulene
At 9:34 AM PDT,
Anonymous said…
Hi Mina
We are so glad that you are recovering slowly but surely. I hope that your energy comes back soon so that you can play with your bubba. Love you lots and you are in my prayers. Love Tessie XOXO
At 11:46 AM PDT,
Anonymous said…
We rejoice in any positive change for little Mina. Tell your little princess to keep up the good work and we will keep praying for strength, Giggles and wellness. What a strong girl she is!!!
With all of our love,strength and prayers...
Amy Adrian and Family
At 11:53 AM PDT,
Anonymous said…
Hi Mina
I hope with all my heart you will get better and we will meet one day.
With Mom, Dad and my sister Dyna
All my love
Lyna
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