Day +40: a really encouraging day!
40 days since the transplant. Mina Brigitta did have her MRI today, and the good news is that they didn't see anything at all to worry about. That leaves several suspects for Mina Brigitta's continued sleepiness: an adverse (meaning opposite of expected) reaction to the steroids, continued effects from the Atarax, body still healing, or even "somnolence syndrome", which is basically a sleepiness in children that can last for several weeks and is caused by radiation to the head. They did see some changes to her brain that are a typical side effect of the radiation therapy, but they aren't any indication that she will or won't have long-term effects. It's just too early to tell. They also got a look at her sinuses and didn't see any indication of infection.
Mina Brigitta celebrated by staying awake and interacting for several hours after she got back to the room. She was reading books with Momma, then watched "Ooh-oohs" (Jungle Book), and then read books with Dadda. After she was done with the books, she still wanted to interact, so we actually had a nice little chat. She pointed to the sketches that are still on the walls and said "Ti-ti dis!", referring to our friend Christine who had helped draw one of the pictures. She pointed to my cell phone and said "Anta der!", because Anta Teri had called earlier. She also asked about the whereabouts of Momma and Anta Kari. Then she noticed her reflection in the window for the first time in a while, and said "Sissy dere." I pointed out that she didn't have any hair (probably shouldn't have :-( ). She looked closely and said "All gone!" Then she said "New dis!" pointing to her hair. I told her it would grow in small at first, but she said "No, big!". She was nestling in very close to me when she said all this, and is still feeling a bit ornery, but
Mina Brigitta celebrated by staying awake and interacting for several hours after she got back to the room. She was reading books with Momma, then watched "Ooh-oohs" (Jungle Book), and then read books with Dadda. After she was done with the books, she still wanted to interact, so we actually had a nice little chat. She pointed to the sketches that are still on the walls and said "Ti-ti dis!", referring to our friend Christine who had helped draw one of the pictures. She pointed to my cell phone and said "Anta der!", because Anta Teri had called earlier. She also asked about the whereabouts of Momma and Anta Kari. Then she noticed her reflection in the window for the first time in a while, and said "Sissy dere." I pointed out that she didn't have any hair (probably shouldn't have :-( ). She looked closely and said "All gone!" Then she said "New dis!" pointing to her hair. I told her it would grow in small at first, but she said "No, big!". She was nestling in very close to me when she said all this, and is still feeling a bit ornery, but

6 Comments:
At 6:43 AM PDT,
Anonymous said…
Arne, Keri, & Mina Brigitta,
Sounds like yesterday was a wonderful day. I hope today Mina Brigitta has even more fun - Mom and Dad too. Take Care, Cory
At 7:33 AM PDT,
Anonymous said…
I am so happy Mina was feeling up for a chat.What a great day to get up and read happy news about your girl. I Was looking at some of you pics and noticed your handsome boys new teeth. WOW! I assure you Aiden and Addison are very jealouse. Heres to you and a strong, positive day little Mina.
Amy Adrian and Family
At 10:00 AM PDT,
Anonymous said…
Arne, Keri and Mina Brigitta
Encouraging words from day 40. I love all the pictures you continue to make available. My parents also keep us updated on Mina Brigitta's progress. Keep your spirits up and we will continue to keep all of you in our thoughts and prayers.
Jon Howeiler
At 10:25 AM PDT,
Anonymous said…
Patty sent your site on to us. It is both heartrending and heartening to read. Your strength and love during this difficult time is amazing. Our thoughts and good wishes are with you constantly.
Penny and Bill Mulligan
At 3:24 PM PDT,
Anonymous said…
I'm so glad to read about all these positives. Mina is one pretty amazing little girl! I hope tomorrow continues to be full of positive changes so you can breathe a little easier and enjoy so many more special moments! Hugs and praises!
Dorothy K
At 9:15 PM PDT,
Anonymous said…
How totally awesome!!! I smiled through most of that note. And you can just feel the love. Hoping each day brings more and more positive news and stronger days.
Love, and prayers always--
Aunt Bonnie
Post a Comment
<< Home