Day +60: oral kytril and magnesium

Switching more meds over to oral, including kytril, the standard anti-nausea medication, and a magnesium supplement. They actually took her off the kytril but said she could have oral doses twice a day if we think she is still nauseous. She's still hardly even cringing while taking her cyclosporine, which is interesting because it really made her gag when she took it before. She's probably just feeling that much better. Next step is the prednisone, which I think they'll try to switch on Thursday when they give her another dose of infliximab.

There are lots of little ways that we can tell she's feeling better. Tonight I was thinking how well she's sleeping these days. She sleeps soundly and doesn't wake up during the night. Transferring her to the bed has become easy, and we haven't slept in the chair in weeks now. She's even fighting going to sleep at night now like she used to do at home, preferring to read book after book instead. And she's waking up early, usually before 8:00 and sometimes before 7:00. The first thing she says every morning when she wakes up is "Coke?" (meaning, "Book?") . Then she says "Dadda up!".

Mina Brigitta loves the games where we list all the people she knows. Lately, the conversations go something like this.

Momma: (Reading "big coke") Do you see a jack-o-lantern, like you and daddy carved last halloween?
Mina: Yeah. (Points to the picture of a jack-o-lantern)
Momma: Should we have a halloween party this year?
Mina: Yeah.
Momma: Who's going to be there?
Mina: Anta?
Momma: Of course! And who else?
Mina: Mom-momma?
Momma: Sure. And who else?
Mina: Amba?
Momma: Yes. And who else?
Mina: Ju-ju (nurse Julie)?
Momma: Yes. And who else?
Mina: Pole?
Momma: Um, no, the pole has to stay here at the hospital.
Mina: No, pole!
Momma: No really, the pole has to stay here.
Mina, insistent: No, pole!