Day +65: Still on course

Still on track to go home Tuesday, despite signs that some new GVHD might be brewing. Dr. Horn thinks the new rash on her legs looks like chronic GVHD, though it's a bit early to tell for sure. She's going to make sure we have follow-ups with dermatology after we go home, and they may want to do a biopsy at some point. Again, even though it was worse today than yesterday, the rash is still slow-moving, nothing at all like the one she had before, and so far it's only on her legs in the areas that weren't affected before. Dr. Horn thinks that pattern is very interesting, but doesn't have any explanation for it.

As for her gut, she ate better than yesterday, and while she did have three poops today, they were small and we didn't see any of the greenish stuff in them. Dr. Horn says it's not uncommon at all for kids to have nausea with the meds she's on. In fact, many kids have trouble with throwing up the meds. So she might even be ahead of the game there.

She did have another fun-filled energetic day, so there's that to be thankful for. We had her out running around in the hallway again, though she wasn't running quite as well as yesterday. I think she might have had sore muscles. I'll be on duty here at the hospital most of the day tomorrow, while Keri and Lyn are deep-cleaning the apartment. Lyn was hanging curtains in the living room today, and later Keri and I moved stuff around in the second bedroom. Keri went and bought a double stroller so she can take the kids out; it'll be a while before Mina does much walking, I think. Pretty much just spending this weekend getting ready.