Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Tuesday, August 09, 2005

Days 99-100: looking up, and then back down again

Yesterday I thought maybe Mina's gut issue had resolved on its own. She only pooped a couple of times on Sunday, and then not until 1 AM yesterday, and her poops looked much better. But today she hardly ate anything all day long, and then had several poops this afternoon and evening with blood in them. We haven't heard anything about the stool sample we dropped off at the hospital on Sunday, so maybe that means the c. diff. is gone. She has a clinic appointment in the morning, so we'll see what they have to say. Her spirits seem very good otherwise, so we're really hoping that means it's nothing too serious going on, but it's a pretty big source of worry for us right now.

I think I somehow missed a day in the official count, because Day 100 is in the title of today's entry, but when I add it up, Day 100 should have been Sunday. Oops, guess we forgot to celebrate. Actually, we've been worried enough that it would be kind of hard to celebrate right now. Day 100 is seen as a milestone; if you've made it to Day 100, they pretty much consider that you survived the transplant. Of course, each case is different, and Mina Brigitta is obviously still facing lots transplant-related issues. The bigger milestones will be when these hip and gut issues start to recede, when she's off the steroids altogether, and when they start tapering her cellcept and cyclosporine. Still, looking back on where she's been, it's pretty amazing that she's doing as well as she's doing.

I'm off to Fort Collins, Colorado on a business trip tomorrow, and Anta Kari and Cousin Carmen are coming down to help out while I'm gone. They arrive at 8 PM, and will stay until Saturday. I'll miss them Thursday, but it will be lots of fun to have them here.

3 Comments:

  • At 1:54 PM PDT, Anonymous Anonymous said…

    101!!! Milestones are always important, because they remind us from whence we have come!!! Phew, it has been a long hard road and Mina is a Survivor!!! God bless you all, because you are all surviving together, and not just that, but doing it with a sensitivity and grace that is to be always and continually marveled at and congratulated!! Love and Prayers Tutu and Richard!!

     
  • At 3:43 PM PDT, Anonymous Anonymous said…

    Woo hoo on reaching days 100 and 101! There are definitely many things to celebrate from where she's come till now along with the things that still need monitoring. I look at the picture of Mina I've taped to my computer monitor every day to remind me to pray for her and her continued healing.
    Blessings and hugs to you!
    Dorothy K

     
  • At 10:14 PM PDT, Anonymous Anonymous said…

    Anta Here....
    Night, night, Mina ... Don't let the bed bugs bight, if they bight squeeze them tight and they won't bight tomorrow night...." I hope you dream sweet dreams tonite my prescious niece.... You have an amazing spirit Miss Brigitta. I love you and Congratulations on day 100! You blow our socks off. Keep up the fight and we will do our part to cheer you on, with love, giggles, snuggles and prayers. I miss you and your brother and Momma and Dadda. Big Hug! I love you, round and round, over the stars and back again ... Anta Teri

     

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