Days +90-92: a mellow weekend
Keri went out by herself on Saturday afternoon, and I was planning to take the kids for a walk, but Mina Brigitta took a three and a half hour nap so we ended up staying home all day. Isaac was in the happiest mood all day long. Maybe he enjoyed the quiet. Then today Stacey Evans came to visit with her husband and 3 year-old son Miles. Stacey was one of our favorite nurses at UCSF, but left around the beginning of May so she missed all the fun part. She was happy to see Mina looking so well after all she had heard, and Mina loved having Miles here. We hung out for a while and then walked down to Golden Gate parked and rode the carousel. Mina picked out a zebra, and we wiped it down with a Clorox wipe before putting her on it. But once it started to move she wanted to sit on the bench with Dadda. Isaac had his first ride as well. It's perfect timing because he's just starting to wave, and he waved at Momma and Sissy watching from the side.
We did get the results back from the MRI. There is a spot on her femur that they're concerned could be osteonecrosis. We will follow up soon with a specialist. They don't sound panicked or anything, but it will be good to some more information. The other news is that she does have a c. diff. infection, so it's back on the antibiotics. It's kind of a relief. No infection is good news, but c. diff. should in theory be easier to get rid of than GVHD. She's still been waking up to poop at night, sometimes twice or three times, which has been pretty rough on me. But hopefully the antibiotics will start to kick in very soon.
We did get the results back from the MRI. There is a spot on her femur that they're concerned could be osteonecrosis. We will follow up soon with a specialist. They don't sound panicked or anything, but it will be good to some more information. The other news is that she does have a c. diff. infection, so it's back on the antibiotics. It's kind of a relief. No infection is good news, but c. diff. should in theory be easier to get rid of than GVHD. She's still been waking up to poop at night, sometimes twice or three times, which has been pretty rough on me. But hopefully the antibiotics will start to kick in very soon.

3 Comments:
At 4:07 AM PDT,
Anonymous said…
I just wanted to let you know that I check on Mina Brigitta every morning as part of my routine. I'm glad to hear you are getting answers and hope things resolve quickly.
At 4:51 PM PDT,
Anonymous said…
It was lovely to see Mina, and the whole family. Mina continues to impress me, as she is so determined to keep right on learning in spite of all she has been through. She was really a great hostess to Miles, offering him books, and showing him that soup makes a good sauce for couscous! We all had a great time.
Lots of love,
Stacey
At 6:55 AM PDT,
Anonymous said…
Anta is thrilled that Mina has been able to "host" a few children. It makes us feel better knowing that she has "normal" toddler activities in the midst of everything. I wish that I was closer to help share some of the weight this illness bears on a continuing basis. I will continue to pray for strength and rest! We miss you guys and look forward to a family hike some time soon. Keep your chins up and call me whenever you need a sympathetic ear. I love you ... Ter
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