Days +78 and 79: just can't stop worrying

Between DSL problems, fatigue, and a movie, just didn't get to the blog last night. A bit of a blah weekend for Mina Brigitta. It's subtle, but I don't think she wasn't in as good a mood as she was last week. She was pretty needy and clingy all weekend, more than I would have expected. Also, her limp seems to have gotten worse, rather than better. The steroids can cause joint problems, so we'll be watching her carefully between now and Wednesday. And eating is still a challenge. She didn't eat much breakfast at all over the weekend, which is out of character a bit. Then today she wasn't interested in her tortellini at lunch, which prompted me to take her temperature. It was a bit high, 37.6 (99.7 F), but not officially a fever. But then later in the afternoon she totally rallied, and we went out for a long walk, and she ate most of a peanut butter and jelly sandwich while sitting in the stroller. She felt nice and cool tonight, and she's been sleeping peacefully. Probably it's all nothing. They've been bumping up her cyclosporine dose because her level has come back too low, so maybe she just has some nausea that's breaking through the Kytril. Time will tell. It's nice to be a place where we don't have to worry so much about a bad day or two.

As promised, Amber sent pictures of her day with Mina Brigitta on Thursday. You can definitely see her chubby 'roids cheeks, and she's got what Keri calls the Sinead O'Connor look going. you may notice some hyperpigmentation from the skin damage. The dermatologist said most of it should go away over time, but it might take awhile. I'm just glad Amber sent the pics, because there's no telling when I'll get around to uploading mine.

http://eshare.hpphoto.com/en/home/welcome.asp?JobID=6a93e6e2-ec88-48e9-af2a-3e6ebb465538