Day +75: a four-hour clinic visit

Mina Brigitta had kind of a rough night last night. She was awake all night and we ended up spending most of it in the chair. Not sure what was up exactly, but hoping it doesn't become a pattern. Then her day started out a bit rough because she didn't want to get into the stroller to go to her clinic visit. We finally had to stuff her in there, and she cried for 15 minutes or so.

Then the clinic visit lasted four hours, but amazingly Keri said it went just fine. The clinic was backed up so Mina Brigitta had to sit in the waiting room for an hour, which she's not really supposed to do. Then various things kept taking forever, and she had an IV drip of immunoglobulin and another drug. I'm sure it was tough keeping the two kids occupied all that time, but Mikaela and her parents were there, so that was a treat. She's the four year-old who was in at about the same time as Mina Brigitta during the spring and took a liking to her, and then had her transplant two weeks before Mina. She's doing really well, and she and Mina enjoyed seeing each other.

The doctors were very pleased to see how well Mina is doing. They think the rash on her legs is pretty much healing, and they think her fingernails getting ready to come off is due to medications and not GVHD, which is kind of a relief. They're going to keep her steroids at the same level for now because we're having a hard time getting her cyclosporine level to come up to the range they want it in, but they want to start tapering as soon as possible, hopefully on Friday.