Days +95-96: a full month home
Mina Brigitta has had a lot of fun the last two days. Emma came to visit on both Thursday and Friday morning, and Amber babysat Isaac and her on Thursday afternoon. She and Emma are becoming quite comfortable together. They interact and play together, but also play separately. One cute thing they do is exchange baby dolls. On Thursday Mina asked if Emma was going to bring a particular baby, because she had played with it last time they were here. Then when Emma came to the door, the first thing she said was "Home baby?", referring to one of Mina Brigitta's favorite babies. It's interesting to see what they play with. Emma likes to play with Mina's shopping cart, and she puts her baby in the seat the right way. But she has no interest in Mina's syringes and medical supplies.
Perhaps it's just all the stimulation, but Mina has been very tired and without much appetite when home alone. Also, her poops are getting runnier and more frequent again after seeming to improve for a few days. It's hard not to worry, because there are so many ways that things could start going wrong. She's at high risk for any number of serious and potentially life-threatening complications. We did finally get her blood counts back from Wednesday, and everything looks absolutely beautiful, so that helps a bit. Probably what's going on is either that the c. diff. is taking a long time to respond to the Flagyl, or else she's got some other G-I issues related to her medications. It doesn't seem like GVHD, at least in our limited experience, which is a good thing.
Mina has been home a month as of today. It's the longest stretch she's been out of the hospital since January. Doesn't seem like quite that long, probably because she's still not feeling nearly as well as she did when she was home before. Mina calls the hospital "pole house", which at least has most of the right consonant sounds. I thought she was over missing that place, but the other day she was reading a book in which a spider was crying. When I asked her why the spider was crying, she said "miss pole!" I said "Does Sissy miss her pole?", and she answered with an emphatic "Yeah!"
Perhaps it's just all the stimulation, but Mina has been very tired and without much appetite when home alone. Also, her poops are getting runnier and more frequent again after seeming to improve for a few days. It's hard not to worry, because there are so many ways that things could start going wrong. She's at high risk for any number of serious and potentially life-threatening complications. We did finally get her blood counts back from Wednesday, and everything looks absolutely beautiful, so that helps a bit. Probably what's going on is either that the c. diff. is taking a long time to respond to the Flagyl, or else she's got some other G-I issues related to her medications. It doesn't seem like GVHD, at least in our limited experience, which is a good thing.
Mina has been home a month as of today. It's the longest stretch she's been out of the hospital since January. Doesn't seem like quite that long, probably because she's still not feeling nearly as well as she did when she was home before. Mina calls the hospital "pole house", which at least has most of the right consonant sounds. I thought she was over missing that place, but the other day she was reading a book in which a spider was crying. When I asked her why the spider was crying, she said "miss pole!" I said "Does Sissy miss her pole?", and she answered with an emphatic "Yeah!"
posted by Arne Olson @ 11:15 PM
2 Comments:
At 9:23 AM PDT,
Anonymous said…
Congratulations on one month at home, dear Mina. Happy to hear that you are enjoying playing with your friend, Emma. I'm sure your "pole" will become less and less important in time as you embrace your "home". Hugs and kisses to ALL of you. Continuing to pray...God bless you!
Love you, Aunt Paulene
At 9:57 AM PDT,
Anonymous said…
I know I have spent what seams like hours on the phone with my sister, but nothing quite gives me the grin like reading the blog, well I take that back, when I hear Mina talking and playing in the background that is music to my ears and spirit. I love reading the "journal" side of your days, it will always need to be a part of our lives, we will look forward to monthly postings when she is in school. (: (I only say that to give you some repreve Arn)
Well, dear family, I am reminding you to take time to absorb the moments when you have no worries crowding your thoughts and you can just be mesmerized with the simple things in life; like your sweet children making new discoveries about life and their environment.
Enjoy your visit with Kari and Carmen. I am so jealous. The school calendar isn't looking very good. First day off is mid Oct. Have a belly laughter day.
I love you guys, Anta Teri
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