Day +94: another clinic appointment

Mina Brigitta had to spend another three hours at the clinic today for a regular appointment, an EKG and an echocardiogram, and a visit to the opthamologist. They scheduled those because her heart rate had been high (~140) at her last two appointments. The initial word is that there's probably nothing to worry about, although they wanted to wait for the official report from the cardiologist. Everything is fine with her eyes as well; no indication of GVHD. We had been concerned because she is rubbing her eyes a lot, and they wanted to make sure she is still producing tears. Keri said she was a very good girl through most of the visit, but she did have a very convenient crying spell when the opthamologist tried to look in her eyes so he could verify that she is indeed producing tears.

But Dr. Cowan was very pleased with how she looked today, so that helped to alleviate some of our concern. We had been kind of worried with everything that's been going on, plus she had been kind of low-energy all day and had been picking at her food but not eating much. And I thought she looked kind of ashen-faced when I got home from work. We had run out of the anti-nausea medication a couple days ago, and she had been asking for it ("No-blah?"). We're never sure if she asks for it because she's feeling nauseous or because she just likes the taste of it. But half an hour after getting it tonight, she was at the table eating yogurt and granola and drinking milk. Then she got kind of wound up and didn't go to sleep until nearly 10:00.

Isaac is officially mobile now. He still isn't crawling on both knees, but he's figured out how to get around with his left knee on the floor and pushing off with his right foot. One of the first things he did was go over and turn the stereo on. Looks like we're going to spend this weekend doing some more child-proofing.