Days 114-115: Nothing much to report

Mina Brigitta had her Wednesday clinic appointment today, and it went just fine. Dr. Cowan was happy to hear the dermatologists' report about her rash. He didn't think it looked like GVH, but he admits to being subject to wishful thinking at times, so he was glad to hear the specialists agreed. At the same time, he's surprised that Mina Brigitta would catch a virus with all of the anit-viral drugs she's been on. The rash is a bit worse, but nothing to change anyone's mind. Dr. Cowan wants to continue tapering Mina Brigitta's prednisone dose, and dropped her cyclosporine dose down as well because her levels have consistently been coming back high since we got her gut issues worked out. Her CMV test was negative last week, which was unexpected but good news. If this week's is negative as well, we'll be able to drop the gancyclovir to once a day.

Mina Brigitta has been quite cute the last few days. This morning she spent quite a bit of time on her rocking horse that she got from Zeedie. She was rocking back and forth saying "Up and down! Up and down!" One of her things lately is to "run" around the house, even though she's barely moving faster than a walk. She also likes to read books by herself, and she's started reading them out loud. Tonight she was walking around the house holding the Dr. Suess book "Wocket in my Pocket", and saying "yoto in coto" ("jertain in the curtain"), "bodo in sodo" ("zower in the shower"), and "bock in cock" ("zlock behind the clock").