Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Saturday, August 20, 2005

Days +109-111: Quiet around here

Momma and Bubba are up in Washington for the weekend, so things are pretty quiet around here. Keri's 20th high school reunion is tonight. They went to dinner and a local bar last night, and tonight is the formal party. She called me today after seeing Zeedie on Guemos Island, raving about the festival they went to and how beautiful it was on the ferry with Mt. Baker in the background. Sometimes it's hard being away from the Northwest. Isaac is having a ball with his Anta and cousins and Momma's Momma, though Keri says he's not used to having quite so much attention.

Mina Brigitta and I have been taking it easy here. Normally it would be fun to have a few days alone with one of the kids, but Mina can't really do a lot these days. No zoo, no woods, no indoor public spaces. So we're mostly hanging out around here. My friend Awais, Emma's Dadda, came by this evening and we walked down to the local burger joint. Mina Brigitta walked all the way there, pushing "Waah Baby" her baby stroller. We were intending to get takeout, but Mina Brigitta wanted to sit at the outdoor tables, despite a temperature of about 60 degrees and a cold wind blowing. She ate about half a burger and some fries. She's been eating OK the last few days, and her poops are down to once a day and looking pretty normal, so that's all a big relief.

Yesterday we had an appointment with the dermatologist. Several of the doctors came by to say hi to Mina Brigitta. Someone from that practice visited her once a day while she had that terrible rash, so they all knew her and had been wondering about her. They were very pleased to see how well she looked. Sometimes when I get worried about things, I have to force myself to remember where she was at then and be grateful for where she's at now. Seeing those doctors again kind of brought that home again, and it was actually a little bit emotional for me.

Anyway, they looked her over pretty carefully, and even brought in the director of the practice, and they all said that they'd never seen GVHD look like the rash that's on her legs. They're not ruling it out, of course, and they were considering whether to do another skin biopsy to confirm, because of how serious GVHD can be. But her rash looks just like the kind of rash that is caused by any one of a number of common and harmless childhood viruses. If that's the case, they said it's likely the virus is already out of her system by now. If it hasn't gone away in 4-6 weeks, or if it gets any worse, they'll probably do a biopsy. This is of course the best news we could have hoped for. Let's just hope they're right.

4 Comments:

  • At 6:35 AM PDT, Anonymous Anonymous said…

    "Sometimes when I get worried about things, I have to force myself to remember where she was at then, and be grateful for where she is now."

    I am sure every culture, philosophy and religion has a saying that is the equivalent of "counting our blessings". What Mina is doing is teaching us how to keep counting, everyday, and how to remember to be grateful everyday. For so many of us, Arne's blog is a mirror that helps us see that we can be grateful even amidst all the suffering that goes on in this world; the suffering that the Buddha says is the nature of life till we awaken. These little awakenings being afforded to us are priceless. They prod us, ever so gently, towards compassion and love as a way of life.
    In peace,love, gratitude, and prayerfulness,
    Hari

     
  • At 9:16 PM PDT, Anonymous Anonymous said…

    QUIET is good! Prayers and Love Tutu and Richard

     
  • At 10:02 PM PDT, Anonymous Anonymous said…

    I love you sweet family. I miss you sweet family. Rest and sweet dreams to you tonight. xoxoxo
    Anta Teri

     
  • At 4:04 AM PST, Anonymous Anonymous said…

    A

     

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