Day -4
The second and last day of the cyclophosphamide. She gets the H-ATG again tomorrow, but that's it for that one as well. She did better today, no reaction to the ATG at all and no fevers or vomiting until tonight. She did spike a fever and throw up at about midnight, 2 hours after receiving a dose of Zosyn. With so many other things going on right now, it's not a given that the Zosyn is causing her current fever, but it sure looks suspicious. We'll keep a close eye on it.
Tomorrow morning we start radiation therapy. She'll get 200 cGy of radiation therapy twice a day for 3 days, for a total dose of 1200 cGy. It's been suggested that we pick a time when all of the people who care about Mina Brigitta could focus on her and channel their collective energies. Well, she gets radiation at 7 AM and 3 PM for the next three days. The radiation is a critical part of the therapy, because it's supposed to kill off both the remaining cancer cells and Mina Brigitta's bone marrow so that she doesn't reject the transplant. It's also a major cause of the side effects I listed a few days ago, particularly those related to brain function and development. So we do need your thoughts and prayers that the radiation does its job, but doesn't cause any long-term problems.
Tomorrow morning we start radiation therapy. She'll get 200 cGy of radiation therapy twice a day for 3 days, for a total dose of 1200 cGy. It's been suggested that we pick a time when all of the people who care about Mina Brigitta could focus on her and channel their collective energies. Well, she gets radiation at 7 AM and 3 PM for the next three days. The radiation is a critical part of the therapy, because it's supposed to kill off both the remaining cancer cells and Mina Brigitta's bone marrow so that she doesn't reject the transplant. It's also a major cause of the side effects I listed a few days ago, particularly those related to brain function and development. So we do need your thoughts and prayers that the radiation does its job, but doesn't cause any long-term problems.

4 Comments:
At 10:55 AM PDT,
Anonymous said…
We will be praying and sending all the collective positive energy we've got. Ben's also said he's going to add an "extra strong" prayer for Mina every night this week.
All our love,
Chris
At 7:04 PM PDT,
Anonymous said…
You ALL are always in my thoughts and prayers, but 7 and 3 will be special prayers just for Mina.
I feel so close to you all just from the daily postings, even though I have not seen you in so long. I am looking forward to the day I log on and find GREAT NEWS.
Love you all,
Bonnie O.
At 7:15 PM PDT,
Anonymous said…
We Love You Mina! You are in our prayers! Hugs and Kisses!!!!
Love-Bailey,Jack,Bryan,Lisa
At 12:45 AM PDT,
Anonymous said…
WE LOVE YOU MINA!!!!!!!
ALWAYS IN OUR THOUGHTS AND PRAYERS
LOVE
UNCLE BILL, AUNTIE KRISTI, COUSIN KENDRA, BASIL, SAGE, NICKI, CINCO AND GOAT
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