Day -5
In BMT, they count the days before and after the transplant. We're starting the countdown on Sunday, which is Day -5. Friday, the day of the transplant, will be Day 0. The big milestone is Day 100, by which time she should pretty much be clear of acute, transplant-related issues. Day 100 is August 7. Seems so far away right now.
Mina Brigitta started her conditioning regimen today. She received cyclophosphamide at 9 AM and H-ATG at 11 AM, which is an antibody grown in a horse in Wisconsin that helps to kill white blood cells. ATG is known for causing allergic-type reactions, and it didn't take her long to develop a fever and a rash that looks like bee stings. Then later in the day she became nauseous and threw up multiple times all over Grandma and Keri. The rash is still there, but her fever is gone, she hasn't thrown up in four hours, and she's resting pretty comfortably right now. She finishes up with the cyclophosphamide tomorrow, but she's is due to receive the H-ATG through Thursday, so she'll probably continue to have reactions until then.
Because of the fever, they've started on the antibiotics again. She'll probably stay on them until her counts come back up, which could be a long time. She's receiving Tobramycin and Zosyn again. Zosyn is the one we think made her nauseous when she was receiving it in February. We'll discuss it with the attending physician tomorrow, but the word from the resident is that no other combination gives as broad coverage as the Tobra/Zosyn combo. I suspect she'll be nauseous all week and don't really want to contribute to it, but at the same time recognize that a little nausea is far preferable to a serious infection that could have been prevented. We'll see what Dr. Mathay says tomorrow.
Today was a hard day for everyone. Grandma looked plumb tuckered out from a long day caring for Mina Brigitta. Aunt Karen spent six hours scrubbing the kitchen. She pulled out the fridge and scrubbed the coils, then scrubbed away 30 years of dirt and grease from underneath the stove. The Kaminski girls' reputation precedes them, but Aunt Karen lived up to it and more today. Keri, Rich and I also spent several hours unpacking stuff in the apartment. Even Isaac had a hard day. I think he was kind of upset from all the commotion and change in routine, because he wanted to be held a lot and he took three naps. We did accomplish a lot today, so that feels good. The bathroom and laundry area still need to be scrubbed and the kitchen unpacked, but the living room and bedroom are in pretty good shape. The second bedroom is a total disaster, but that can wait a little longer.
Mina Brigitta started her conditioning regimen today. She received cyclophosphamide at 9 AM and H-ATG at 11 AM, which is an antibody grown in a horse in Wisconsin that helps to kill white blood cells. ATG is known for causing allergic-type reactions, and it didn't take her long to develop a fever and a rash that looks like bee stings. Then later in the day she became nauseous and threw up multiple times all over Grandma and Keri. The rash is still there, but her fever is gone, she hasn't thrown up in four hours, and she's resting pretty comfortably right now. She finishes up with the cyclophosphamide tomorrow, but she's is due to receive the H-ATG through Thursday, so she'll probably continue to have reactions until then.
Because of the fever, they've started on the antibiotics again. She'll probably stay on them until her counts come back up, which could be a long time. She's receiving Tobramycin and Zosyn again. Zosyn is the one we think made her nauseous when she was receiving it in February. We'll discuss it with the attending physician tomorrow, but the word from the resident is that no other combination gives as broad coverage as the Tobra/Zosyn combo. I suspect she'll be nauseous all week and don't really want to contribute to it, but at the same time recognize that a little nausea is far preferable to a serious infection that could have been prevented. We'll see what Dr. Mathay says tomorrow.
Today was a hard day for everyone. Grandma looked plumb tuckered out from a long day caring for Mina Brigitta. Aunt Karen spent six hours scrubbing the kitchen. She pulled out the fridge and scrubbed the coils, then scrubbed away 30 years of dirt and grease from underneath the stove. The Kaminski girls' reputation precedes them, but Aunt Karen lived up to it and more today. Keri, Rich and I also spent several hours unpacking stuff in the apartment. Even Isaac had a hard day. I think he was kind of upset from all the commotion and change in routine, because he wanted to be held a lot and he took three naps. We did accomplish a lot today, so that feels good. The bathroom and laundry area still need to be scrubbed and the kitchen unpacked, but the living room and bedroom are in pretty good shape. The second bedroom is a total disaster, but that can wait a little longer.
posted by Arne Olson @ 11:28 PM
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