Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Sunday, April 17, 2005

Gearing Up

Logging in from a Best Western in Bandon, Oregon tonight. I'm on a business trip, my first since December. It's kind of tough timing for a trip, but it couldn't really be helped. I was first planning to send an officemate, then to attend by phone, but it happened to work out that Auntie Teri and Keri's friend Kristin arrived Saturday, so they're well-covered at home. Since this is a kickoff meeting for a project that I'm managing, I'm happy to be able to to be there in person. Still, it was very difficult to leave today, more difficult than I expected. This is the first night I've been away from her since her relapse. She was helping me pack today, and when I arrived at the hotel, I discovered a fluffy yellow duck in my bag.

Mina Brigitta's 2nd birthday is on Tuesday. Anta and Kristin will be here, and Amber is arriving home from her Australia/New Zealand trip Monday so she'll be there as well assuming she's healthy. There won't be a lot of people there, but I suspect the atmosphere will be more than festive enough to make up for the lack of numbers. Kristin flew down from Alaska last year and helped make Mina Brigitta's first birthday really special, so it's perfect that she was able to return for a command performance.

Less than a week now until we go back into the hospital to begin the transplant process. Maybe I'm just tired, and maybe it's because of the trip and her birthday coming up, but everything has seemed kind of surreal the last couple of days. Every moment is weighted with a poignancy that can be almost overwhelming. The feeling is probably exacerbated by the fact that Mina Brigitta is so totally oblivious. She has no idea what she's about to go through, nor what she's already endured. She's just living life day by day, doing all the things that toddlers do. You can almost lose yourself in that moment with her, engaging in a game of "baby poopoo" (changing the doll's diapers) or reading a book in her favorite chair, until something reminds you that this is all temporary, and that next week at this time they'll start tearing down her immune system. Mina Brigitta and I were alone in the house today, and I put on some meaningful but kind of melancholy music and found myself becoming a bit emotional as I watched her playing contentedly by herself on our living room floor. Mina Brigitta sensed that right away and wanted "up with dadda". She clung onto me and showed me that it was OK, but she needed me to be strong for her.

Then tonight as I was driving from Coos Bay to Bandon, there was a lovely Irish music show on NPR. The theme was spring, and there were several songs featuring St. Bridget, who the DJ explained is associated with the season in Ireland and with rebirth and renewal. Bridget is the Irish version of Brigitta, so I found that to be a pleasant and hopeful metaphor to take with me into next week.

4 Comments:

  • At 6:50 AM PDT, Anonymous Anonymous said…

    Arne,
    I find it difficult to say how much I feel, everyday, along with you, the tug of all the emotions that each day brings. But I want you to know, speaking for just myself now, that what you, Keri and Mina are doing is not only inspiring, but also helping me deal everyday with what I sometimes see as a Damocles's sword hanging by the thin thread of fate above my head. Mina exemplifies what we all should do with our lives, live with awareness in the moment, and be loving and caring all the time.
    It is a priceless gift that you are giving to so many people by sharing this incredibly moving and uplifting story.
    Many, many happy returns to Mina. May she be blessed with a long, happy, fulfilling life.
    Hari
    PS. Apart from AML M2, Mina also shares her star sign - Aries - with me.

     
  • At 3:32 PM PDT, Anonymous Anonymous said…

    Arne: You are such an amazing father and son-in-law. so in touch with what you are feeling!! and going thru emotionally. I have marveled all along at both yours and Keri's ability to get the info and make the best informed decions for your daughter.
    It is also not coincidental that you would hear about Saint Briget (sp?) She was an amazing woman, too. But one of the things that stuck out to me in the Celtic thought of her time was that she would not really separated from us except in an dimension that we don't really totally comprehend, but we can pray to her. And I am!!!
    Brigitta has her own Saint, and many more praying for her.
    We love you!!
    Brigitta: YOu are TWO tomorrow. Hope you enjoy wearing the little things that Richard and I sent with your Anta. So GLAD that she is with your for your special day. You are sooo special and so loved. Tutu and Richard.

     
  • At 10:41 PM PDT, Anonymous Anonymous said…

    Hi Guys,
    Arne I wanted to let you know how very sorry I am for the loss of your Grandmother, it is not easy. I have really struggled today with what to say. I guess I want to start with I love you all so much and internalize daily even what is not being said. I also know that the statistics don't mean a thing they are talking about a sample of people none of whom are Mina. She has the will we all want to have with an innocence and bliss that most don't.

    I noticed more of the blog today than usual and went to the link for Sam's page. I cried when I read it and wanted to say THANK YOU from the Aunt of the beautiful girl you are riding in honor of and the wife of a husband with lymphoma. The society you are raising funds for not only addresses the blood cancers leukemia and lymphoma but ends up the start of treatments for most other cancers. More people than you will ever know will be thankful.

    Arne I am so sorry you have to be away from home right now but am thankful that you have such great substitutes standing in for you. Enjoy your quiet and appreciate all you have. A beautiful and loving wife and two incredible children. You also have always appreciated a lesson most of us take longer(sometimes to long) to figure out that each and every moment is so incredible just enjoy it all.

    Now to you Missa Mina Brigitta Mae Olson. You are to have the best birthday ever Auntie wishes she could be with you but will call you and sing to you. You are a very special 2 year old indeed, one who is loving, caring energetic, kind full of smiles and dreams that will all be fulfilled. Auntie wishes for you the BEST for your second year. It will be a miracle year.

    Love you all,

    Auntie Kristi, Uncle Bill, Cousin Kendra and of course Mr. Goat, Nicki, Cinco, Sage and Basil

    P.S. Hi Ter and Kristin.

    P.P.S. Kristin, Kendra has had her sesond driving session with her drivers ed instuctor and will have her license in four months. ( How scary is that )

    Love you all

     
  • At 11:41 PM PDT, Anonymous Anonymous said…

    Arne,
    I could feel your feelings. Started crying. When all of this is over and Mina is playing happily and you have a chance to relax - do relax. Then, should you get bored at your current job, you could always become a writer. I'd read your books.
    I'll be away for five days so I won't be able to catch up until Monday - hope everything will run smoothly. Happy birthday ("Grattis pÄ födelsedagen" in Swedish) to Mina from all of us!!!
    Love to you all, Pia & family
    PS. Great news that Mina has put on weight! She weighs the same as our 4-year-old now :)

     

Post a Comment

<< Home