Here we go...
Arrived back in the hospital around noon today. We ushered Mina Brigitta out of the house just as the packing crew arrived at about 9 AM. After a nice walk at the agua park, we stopped back by the house to pick up Momma and head in. She threw a fit when I tried to get her dressed to go out this morning -- still wanted to stay home all day -- but was fine when we got here. Grandma ("momma['s] momma") and Aunt Karen arrived today, so that helped. Keri and I both went out in the afternoon, down to the new flat to clean, and as we were leaving she got a serious look on her face and said "all done", meaning with the hospital, and wanted to come with us. But she got over that quickly, and when I approached the hospital room door, I heard belly laughs instead of screaming. She was pretty amped up most of the evening, before finally falling asleep around 10:00. I'm just happy that she's adjusting so well; I've been a bit worried about that because she's been enjoying being at home so much.
We're back in Room 739, which is the long skinny room we were in twice last year. It's not the biggest room, but it's pretty big, and it has a daybed next to the window. There are a lot of rules for taking care of bone marrow patients: two-minute hibiclens scrub before entering the room, everything that comes in has to be cleansed with alcohol, all of her clothes and soft toys need to be put in a hot dryer for at least 30 minutes, the food tray has to be specially wrapped and can only be left out an hour. We're already in the habit of following most of the rules, so it shouldn't be a major adjustment for us.
She's already received her first medications: Acyclovir to help prevent infection by viruses in the herpes family, and IV immunoglobulin, which is another immune booster. The chemo starts tomorrow, and then the radiation Tuesday. She'll probably be feeling pretty crappy by tomorrow afternoon, and will probably stay that way for a while. They've now set the transplant date for Friday the 29th; apparently the cells will arrive too late on Thursday for all of the processing to be completed.
We're back in Room 739, which is the long skinny room we were in twice last year. It's not the biggest room, but it's pretty big, and it has a daybed next to the window. There are a lot of rules for taking care of bone marrow patients: two-minute hibiclens scrub before entering the room, everything that comes in has to be cleansed with alcohol, all of her clothes and soft toys need to be put in a hot dryer for at least 30 minutes, the food tray has to be specially wrapped and can only be left out an hour. We're already in the habit of following most of the rules, so it shouldn't be a major adjustment for us.
She's already received her first medications: Acyclovir to help prevent infection by viruses in the herpes family, and IV immunoglobulin, which is another immune booster. The chemo starts tomorrow, and then the radiation Tuesday. She'll probably be feeling pretty crappy by tomorrow afternoon, and will probably stay that way for a while. They've now set the transplant date for Friday the 29th; apparently the cells will arrive too late on Thursday for all of the processing to be completed.
posted by Arne Olson @ 11:12 PM
1 Comments:
At 5:50 PM PDT,
Anonymous said…
Hey Sweetie!!
So glad that going into the room wasn't so bad, and you got a good room too!! I am working again on wed, thurs, and fri, so I will still get to do your transplant if it is at night, if it is during the day I will just have to give you some good lovin before and after!! I hope that you have a good sunday, and I will see you tommorow since I am teaching clinicals then
Amber
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