Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Sunday, February 27, 2005

Better

Definite improvement today. Mina Brigitta woke up at 7:30, and rather than looking around and closing her eyes again, wanted to get up right away. Throughout the day she had a certain gusto that she didn't have yesterday or the day before. She wasn't quite so clingy or needy, and even seemed to recover some color in her cheeks. Could be that she's finally starting to feel like herself again after kicking whatever it was that was eating her the last two weeks. I also think some of the hard adjustment has been that Isaac is now starting to become a competitor. She's a very sweet big sister, but there are definitely times when she's jealous or wants to take away his toy just because. This would probably have been brewing all this time, but it just didn't manifest at all in the hospital.

She's even finally starting to show some interest in food again. I got her to eat some ice cream last night by showing her the special ice cream spoon with her name on it that Pia Sundqvist's daughter Surya sent from Sweden. Today she had some black beans and avocado ("appa-caw") and some blueberry yogurt with granola (just like "dadda"). She's become a very dainty eater, taking great pains to get the smallest possible bite on her spoon before raising it to her mouth. This is the girl who used to shovel it in as fast she could without stopping to breathe. But then at dinner she had two servings of spinach tortellini and two servings of daddy's moussaka. We're trying to calorie-load by coating everything we give her with olive oil (which she loves) or butter. I also bought some triple cream brie cheese which she seems to like (so does daddy).

It's such a relief to see her feeling better. She's been so sick that it's been really hard not to fret. I've been sort of realizing how much comfort I took last spring in the fact that she did so well throughout the treatment. I figured as long as she was doing so great, she was going to be OK. Well, that was true as far as making it through the treatment goes, but it might have been a false comfort. Dr. Loh has a theory that Mina Brigitta metabolizes drugs faster than most people. This would explain why they keep having to ramp up the doses of antibiotics because the levels in her blood keep coming back too low. It might also explain why she never got the nausea or gut sores or other major side effects during her previous rounds of chemo; perhaps the reason she sailed through the chemo treatment was that she wasn't getting high enough doses. There was nothing to be done about it anyway (there's no protocol for tinkering with doses of the chemo she got), but it's an interesting theory.

4 Comments:

  • At 4:07 AM PST, Anonymous Anonymous said…

    Prayers continue that Mina gets better and better everyday. It is great to start a day with the news that she is beginning to eat better.
    Lots of love and prayers,
    Hari

     
  • At 7:11 AM PST, Anonymous Anonymous said…

    Lil Mina, Keep on fighting little princess. I will continue to help you with neverending prayer from the middle of the Bering Sea. Ker and Arn, Keep up the good work. Your lil' girl is very blessed to have you as parents. As hard as at may seem at times like this. Right now, more than ever, you must give praise to God for the gift that he has given you. Keep your chins up and give her a hug for me. Love Uncle Brent

     
  • At 2:16 PM PST, Anonymous Anonymous said…

    Mina Brigitta, Gramma was soo happy to see your headling today - "better". That brings joy to my heart...Tell daddy to keep that ice cream around...ummm. maybe he could add some granola to make it crunchy. Keep eating sweetheart. Is brother crawling yet? Hugs to brother, mommy & daddy and of course a bear hug for you....Luv you. Gramma

     
  • At 6:10 PM PST, Anonymous Anonymous said…

    Thanks so much Arne & Keri for this blog to keep us apprised of Mina's progress. I've just read it for the first time tonight. Tears are impossible for me to avoid, but it's also such an important reminder of the things that really matter in life.

    Ben still prays with me every night for Mina Brigitta. He often asks what type of sickness Mina has because its difficult for a four year old to understand what she's going through. I think I will start reading the blog to him occassionally. He really wants to meet her.

    We feel very far away from you right now and wish you or we were closer. I'm glad to hear she's eating better and that she's clingy just like Anna often is.

    I can't express how much we miss you all right now. We really seethe with anticipation for the moment this summer when we are able to take Mina and Issac in our arms.

    Love,
    Chris

     

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