Day +5
More of the same today. Mina Brigitta had lots of energy and played hard all day long. She was so energetic that she didn't take a nap today. She crashed hard at about 9:00; one minute she was playing with her sticker book, and then suddenly she crawled up on me and was asleep in about two minutes. Still had no interest in eating, though. After I posted last night, Mina Brigitta woke up around midnight and threw up blood. The nurse assured me that this is pretty common, and that it looks worse than it probably is. For better or worse, Mina Brigitta has never had any mucousitis through five rounds of high-dose chemo. Hopefully this means the radiation is affecting her cancer in a way the chemo didn't.
She's also still expressing her desire to go home. This morning I was reading "Go Dog, Go!", when we came across a picture of a dog in a stroller. The dog was going "home", Mina said, and she made me take the book out into the anteroom and add it to the pile of "waah babies" from yesterday. Then we drew some "waah apples" (teary-eyed apples), and out those went into the anteroom. Then we drew some smiling apples, and those stayed in the room.
We did get some sad news over the weekend: Stacey, one of our favorite nurses, and one who took a special interest in Mina Brigitta, is leaving UCSF. She's been here for four years, which she says is "long enough". I totally understand.
She's also still expressing her desire to go home. This morning I was reading "Go Dog, Go!", when we came across a picture of a dog in a stroller. The dog was going "home", Mina said, and she made me take the book out into the anteroom and add it to the pile of "waah babies" from yesterday. Then we drew some "waah apples" (teary-eyed apples), and out those went into the anteroom. Then we drew some smiling apples, and those stayed in the room.
We did get some sad news over the weekend: Stacey, one of our favorite nurses, and one who took a special interest in Mina Brigitta, is leaving UCSF. She's been here for four years, which she says is "long enough". I totally understand.

2 Comments:
At 5:49 AM PDT,
Anonymous said…
Mina's homesickness reminds me of my own son's experience at not being allowed into my hospital room (in India) and then, and having to stay, for the first time in his life, at a strange home without either of his parents with him. He managed that fpr five days (I was amazed that he did it even once) and then began getting upset with Daddy's "infection". Now he writes sentences for his homework like: "My Dad stayed in the hospital for a long time because of cancer."
Our fond thoughts and ardent prayers are with you all the time.
Peace, Hari
At 9:31 AM PDT,
Anonymous said…
Hi Mina,
Hold on tight. I am glad that you have enough energy to wipe your mom and dad out. Get well soon so that all of us can see your smily face. Love you lots and remember that god and your guardian angel is with you at all times. And they will make sure that you are taken care of. Love you lots hugs and kisses Tessie XOXOXOXOXOXOXOXOXOXOXOXO
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