Day +29: officially worried

Mina Brigitta had another hard day today. She slept most of it, waking up about once an hour to have a painful bowel movement. Even though her stools are mostly water, she still cries out in pain when she passes them. Twice this morning she also passed some tissue from somewhere in her gut, indicating the severity of the breakdown. Her rash also continues to spread, getting angrier-looking and covering more of her body. Her skin is starting to break down in places, including two spots in her diaper area. Between the bowel pain and the itching, she's just extremely uncomfortable, so we've boosted the morphine level way up and she's been getting Benedryl and Tylenol pretty regularly as well.

We saw Dr. Cowan this morning, and he didn't really paint a bad picture. He said her rash is evolving but not necessarily getting worse. He was comforted that the ultrasound showed nothing, and by the fact that her liver numbers all went way down today. Maybe it's just that she looks worse, but inside things are getting better. But yesterday she was up and interacting, while today she just slept all day. She even let Grandma Lyn hold her in the chair. It's so hard to see her in so much pain, and to see her face all red and swollen, doubly so not knowing what the outcome is going to be. We'll just have to hope that tomorrow brings some improvement. And if not tomorrow, then the next day.