Day +24: and up and down and up and down
Mina Brigitta had a great morning and a horrible evening. I stayed home from work today so Keri and Lyn could work on the apartment. She was feeling great this morning, and spent an hour out in the hallway. By the end of it we were playing the game where she runs to me giggling and I lift her way up in the air. Then she went down quietly for her nap at about 3:15.
But when she woke up around 5:30, she seemed lifeless and only wanted to lay on me. She started throwing up at about 7:00, and has thrown up four times so far, despite having received three different anti-nausea medicines. No idea why the sudden change. The only thing we can think of is that they did raise the dose of her cyclosporine, which is really a kind of chemo even though it's given as an anti-rejection drug. She gets her next dose at midnight, so I'm thinking it's probably going to be a long night.
Dr. Cowan came on service this week, much to our relief and apparently to the relief of the entire staff. He's the director of the bone marrow service, and the doctor we met with several times before the procedure. He's been here a long time and has a lot of experience with transplants. He immediately started to taper down her dose of prednisone, and hopes to actually get her off of it soon. There's a good chance she'll have to go back on it because of GVH, but he wants to make sure GVH is actually going to happen before she has a long course of prednisone. He also mentioned that the elevated liver function tests could be the result of the anti-fungal drug she's on, so they're going to look at changing that.
But when she woke up around 5:30, she seemed lifeless and only wanted to lay on me. She started throwing up at about 7:00, and has thrown up four times so far, despite having received three different anti-nausea medicines. No idea why the sudden change. The only thing we can think of is that they did raise the dose of her cyclosporine, which is really a kind of chemo even though it's given as an anti-rejection drug. She gets her next dose at midnight, so I'm thinking it's probably going to be a long night.
Dr. Cowan came on service this week, much to our relief and apparently to the relief of the entire staff. He's the director of the bone marrow service, and the doctor we met with several times before the procedure. He's been here a long time and has a lot of experience with transplants. He immediately started to taper down her dose of prednisone, and hopes to actually get her off of it soon. There's a good chance she'll have to go back on it because of GVH, but he wants to make sure GVH is actually going to happen before she has a long course of prednisone. He also mentioned that the elevated liver function tests could be the result of the anti-fungal drug she's on, so they're going to look at changing that.

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