Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Friday, May 20, 2005

Day +21: three weeks out

Well, it's been an interesting three weeks. We've definitely experienced a bit of the roller coaster ride we were warned about, but everyone is telling us we've gotten off pretty easy. That can still change, of course. GVHD can show up at any time, and her immune system will take six months to a year to be back to full strength. But we've been pretty lucky so far. There's still the nagging issue of her liver function tests, but no one seems to be worried about it. I'm planning to quiz the doctors one more time tomorrow.

Mina Brigitta is now taking all of her medications by mouth. She's still on the IV, but only because she's not drinking enough fluids. There's sort of a chicken-and-egg problem there; she's not as thirsty when she's getting IV hydration, but they won't stop the IV until she drinks more. It's true that she's not eating or drinking as much as we would hope. She's probably still feeling a little punky from everything she's been through. But there don't seem to be any more hurdles to us going home, so assuming everything goes well over the weekend I imagine they'll spring us mid-day Monday. That gives us the weekend to get the apartment ready, which is probably not quite enough time, but it will have to do.

I have another photo album ready; see the link at right. I've been working on these at night on those rare occasions when Mina Brigitta goes to bed at a reasonable hour (last night she went down at midnight :-( ...). It's from our previous stay in the hospital. I have two more to do, one from the time at home and one from this hospital stay. I'll probably work on the newer one first to get the pictures of the transplant day out there.

3 Comments:

  • At 8:49 AM PDT, Anonymous Anonymous said…

    Arne,

    Boy, your catch-22 with the fluids sound exactly like what happened with Adam. He never drank when on fluids because he wasn't thirsty, and they wouldn't take him off until he drank. They released us from the hospital with a pump and we gave him hydration for 10 hours overnight. We slowly weaned it and he eventually started drinking again. He is still on the hydration (only for 1 hour) due to the cyclosporine making his kidneys waste away his magnesium. I'm so happy to hear that Mina is getting out of the hospital soon. She has done really well!

    Deb (Adam's Mom, LLS boards)

     
  • At 1:03 AM PDT, Anonymous Anonymous said…

    Hi again,
    Loved to see all the new pictures of Mina and the rest of the family. We're so relieved that Mina is feeling better:) Let's hope going home will make life even easier.
    Pia and the rest of the Sundqvists

     
  • At 2:22 PM PDT, Anonymous Anonymous said…

    Hello Mina - We loved all your new pictures! We are so excited that you may be going home soon!!!! Bailey and Jack love checking up on you! The blog is so great and keeps us up to date. You are still top of our prayer list! Hope you have a good day!
    We love you! Bryan, Lisa, Bailey and Jack
    XOXOXO

     

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