A day of eating
Mina Brigitta hasn't spiked any fevers yet, and apparently the antibiotic she's on is effective against Gram negative bacteria, so hopefully that means the Broviac repair isn't anything to worry about. She had a good day today, seems to be recovering her energy and especially her appetite. Today she ate breakfast, a mid-morning snack, lunch and dinner, and then about 8:00 wanted my dinner too. We couldn't give her that, but Grandma made her a packet of mac & cheese and she ate the whole thing. She' s also drinking a lot of milk and orange juice these days. She used to be able to say "oh-nge juice", but now she just makes an "O" with her fingers when she asks for "juice".
She didn't take a nap today either. They walked down the hall and back a few times, and they had a neutropenic hour in the playroom for her from 12:00 to 1:00. When I got back she told me everything she'd done: painted, threw balls, played with the babies, and played with the little kitchen set ("num-num"). It's really good for her to get out of the room, and doing so seems to have a positive feedback effect on her energy level.
We finally got word back from the donor's treatment center. No word yet on whether he's passed his physical, but he's asking for a 4/27 for his donation. He would donate in the morning, and then I think the cells would be infused that same night. That means we would probably get a week to 10 days at home before going back in to begin the conditioning on the 19th or so. It would be kind of a drag, but then again kind of fitting and poignant to start this process on her birthday.
She didn't take a nap today either. They walked down the hall and back a few times, and they had a neutropenic hour in the playroom for her from 12:00 to 1:00. When I got back she told me everything she'd done: painted, threw balls, played with the babies, and played with the little kitchen set ("num-num"). It's really good for her to get out of the room, and doing so seems to have a positive feedback effect on her energy level.
We finally got word back from the donor's treatment center. No word yet on whether he's passed his physical, but he's asking for a 4/27 for his donation. He would donate in the morning, and then I think the cells would be infused that same night. That means we would probably get a week to 10 days at home before going back in to begin the conditioning on the 19th or so. It would be kind of a drag, but then again kind of fitting and poignant to start this process on her birthday.

3 Comments:
At 4:41 AM PST,
Anonymous said…
Hi,
It has been awhile but we think of you, pray for you and talk about Mina frequently. We keep her picture pinned to the notice board - it's the one from your Xmas letter when she was just a baby playing in the bathtub.
Our children are wondering how Mina is doing and I've been trying to update them. They cheer on her!
It's so hard to read about what Mina (and the rest of you) is going through. Right now we really hope for your success with the donor.
By the way, Surya is delighted that Mina liked the icecream spoon. Let's pray Mina gets to eat lots of icecream with that spoon in the future. And Dad can have some as well as he's watching tv.
We think of you.
Pia and Martin
Surya, Sixten & Nirmala
At 4:40 PM PST,
Anonymous said…
Hello From NEW ZEALAND!! I made it. It sounds like you have had an adventureous couple of days. I hope that the broviac keeps working ok. Sounds like I will get to be there for the whole transplant if things keep going this way!!!! And you guys will get to go home for a couple of days before heading back in. We haven't done anything too exciting yet, got here yesterday (saturday here) morning and went out and about the town and came back and went to bed early...and today everything is closed becuase of easter, but tommorow we plan on doing some more exploring. Happy Easter to you guys. Tell everyone I say hello and I will keep you updated, just as you keep me updated!!! Talk to you soon
Amber
At 9:12 PM PST,
Anonymous said…
*Hey Precious,*
*Guess what i will be there in 2 days.
*We will have lots of fun.
*On Monday i get to drive for the first time on public roads.
*(So worn your parents to stay off the roads) LOL.
*Suprisingly i'm not that bad of a driver.
*Uncle Arne you are getting very lucky, i'm not missing any driver ed classes.
*Well im packing in all the excitment of coming down (do you kno whow hard it is to pack for a teenage girl let me tell you)
*I'm so glad to here that you are getting your energy up.
*I think some of my enthusiasim (sp) will rob off on you and you will be very peppy.
*Well Aunt Kristi is wathching Little House On the Praire (her favorite).
*So i better go well i cant wait to see you I love you and everbody down there!
*Love Always,*
*Cousin Kendra*
*P.S. By the way i got a job at silverwood (well kinda)
*I'm going to be a lifeguard and they said that if i pass the class i have to go through i'm hired its going to be so much fun.
*Well i will tell you to all the stuff when i get there.
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