No Improvement
We were hoping the additional antibiotic would take care of the fevers, but that doesn't appear to have happened. Mina Brigitta had a reasonable day today -- not a lot of energy, but was up and playing most of the day. No appetite, though. But her fever spiked above 39 again tonight. The doctors told us today they don't have a lot of tools left. She's already receiving broad spectrum antibiotics and anti-fungals, even though there's no evidence of any bacterial or fungal infection. About the only other thing they can do is pull her Broviac. That would mean more surgeries -- one to take it out, and another to put it back in before her BMT, so we're obviously hoping to avoid that. They also said her condition is acting like a virus. She's still positive for RSV, but there are dozens of other viruses circulating that they don't test for. She's already received an antibody treatment against viruses. There are other anti-virals, but of questionable effectiveness. They're taking some comfort from her CT scan, and from the fact that she isn't having any trouble breathing.
The good news we got today is that her neutrophil count (the white blood cells we're watching most closely) shot up today. It went up so quickly I think it has to be a mistake -- these counts are notoriously inaccurate. I'll want to wait until tomorrow or Monday before doing much celebrating. Still, we're now hopeful that her own immune system will recover over the next several days. She really needs that boost.
The good news we got today is that her neutrophil count (the white blood cells we're watching most closely) shot up today. It went up so quickly I think it has to be a mistake -- these counts are notoriously inaccurate. I'll want to wait until tomorrow or Monday before doing much celebrating. Still, we're now hopeful that her own immune system will recover over the next several days. She really needs that boost.

5 Comments:
At 9:07 AM PST,
Anonymous said…
Dear Little Mina,
We are so sorry to hear you are not feeling better yet. We will pray extra today that this will be the turning point. Hopefully your counts will stay up. We will check on you later today. You have to feel better by tonight since Auntie Teri will be there to play with you. She is bringin lots of hugs and kisses from all of us. Love you all so much.
Auntie Kristi, Uncle Bill and Kendra.
p.s. Sage and Basil send kisses and wiggles.
At 3:29 PM PST,
Anonymous said…
Hi Mina,
I think gramma may have figured out how to send you little notes the quick way...I am so sorry those viruses will not leave you alone...auntie teri better give you and brother big hugs from me today. Can't wait to snuggle you and read books...I'm keeping you in my prayers, love you bunches... Gramma
PS Arne thanks so much for the daily updates. Talk to you soon. Happy Valentines Day to all of you. Gramma
At 3:31 PM PST,
Anonymous said…
Hi Mina,
I think gramma may have figured out how to send you little notes the quick way...I am so sorry those viruses will not leave you alone...auntie teri better give you and brother big hugs from me today. Can't wait to snuggle you and read books...I'm keeping you in my prayers, love you bunches... Gramma
PS Arne thanks so much for the daily updates. Talk to you soon. Happy Valentines Day to all of you. Gramma
At 6:04 PM PST,
Anonymous said…
My Beautiful Mina,
"I lay there staring at the ceiling each night
At 7:08 PM PST,
jenny in the falls said…
to mina's family - wishing you strength and endurance as you help your daughter fight her battle. i hope her fevers diminish and her appetite returns soon. chemo really messes with their tummies and you always feel better when your baby starts eating again.
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