Day +3511: Preliminary news is good
We received some news about Mina's biopsy results over the weekend. Dr. Horn has been consulting with two of the leading experts in the country on pulmonary late effects, and so far they are saying that the
bronchiolitis does *not* appear to be caused by graft-vs.-host disease. Their best theory at this point is that the obstruction is caused by damage from the radiation she received in preparation for the bone marrow transplant. As her body is growing, the small airways are not growing along with the rest of the body, causing obstruction.
This is all still preliminary. We are meeting with the pulmonologist tomorrow to get her take on things. The good news is that they are no longer planning intensive immune-suppressing treatment in the near term. What we don't know yet is what this would all mean for the long-term course of her lung disease, and what other kinds of treatments they might prescribe.
The patient herself is doing great. We have been taking it easy a bit, but it hardly seems necessary. She developed an unusual dry cough in the days after being home, but it's the season and Isaac has been coughing like crazy too. We also meet with the surgeon tomorrow to make sure the recovery is going smoothly, but we don't have any concerns. I will post again tomorrow once we have an update.
This is all still preliminary. We are meeting with the pulmonologist tomorrow to get her take on things. The good news is that they are no longer planning intensive immune-suppressing treatment in the near term. What we don't know yet is what this would all mean for the long-term course of her lung disease, and what other kinds of treatments they might prescribe.
The patient herself is doing great. We have been taking it easy a bit, but it hardly seems necessary. She developed an unusual dry cough in the days after being home, but it's the season and Isaac has been coughing like crazy too. We also meet with the surgeon tomorrow to make sure the recovery is going smoothly, but we don't have any concerns. I will post again tomorrow once we have an update.

1 Comments:
At 8:20 AM PDT,
Hari said…
Two days ago, out of the blue, my son asked me who was the girl who had cancer (same one as mine) many years ago. I wondered how it happened that I lost touch after such intense interactions as she fought GVHD following her transplant. Thankfully, he also found the blog and shared the link with me. I know this last entry was 10 years or so ago, but I wanted to touch base and request an update if you see this. Peace nd love, Hari
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