Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Tuesday, May 22, 2007

Day +753: No news on blood tests

Just a quick note to say that we do not yet have any news about Mina's bloodwork. They ordered several tests at Mina's two-year appointment including donor engraftment study, thyroid function test, and b-cell titers (which will tell us whether Mina is ready to receive live vaccines and can get her MMR). But they are still all outstanding. I guess we've gotten used to just assuming no news is good news. It will still be nerve-wracking when we get the engraftment results -- we really want all of her blood cells to be male, Rodriguez cells.

Mina and Isaac are doing fine these days. Mina has been having a little bit of a hard time at school. I think there is a bit of an unhealthy dynamic going on with two other girls in the school in particular. Mina hasn't been real enthusiastic about going to school lately, and today Julie said she cried four times, which she just doesn't do. Part of it may be sleep-related -- we're working really hard to get them on a regular schedule that provides enough sleep, but it's a challenge. And both Keri and Isaac are coming down with colds and not feeling all that great, so it wouldn't be much of a surprise if Mina did too. But I do think there's something going on with the other two girls that is causing stress for Mina. It's a bit hard to see, because she always has really loved school. But I guess these things are unavoidable when kids get together, and it will eventually pass. But the parents are starting to talk to each other about how to maybe shake things up a little bit.

The kids continue to be their cute, sweet selves. Mina is in more of a Daddy-phase again. She has learned that Daddy stays home on Saturdays and Sundays, and now every morning she asks what day it is. And when the answer is "Saturday" or "Sunday", she gets this huge grin on her face and she's very happy. But when the answer is one of the other days, she says "I want it to be Saturday every day!" For a long time, every time she left the house for school while I was still getting ready for work, she would say "You won't be lonely because all the babies will be here to keep you company." She's not saying that so much anymore, but her latest thing is to send things with me to work. A few weeks ago she told me I should bring Home Baby to work, so I lugged him back and forth in my bag for a few days. Yesterday she sent me with the certificate from a make-your-own teddy bear that she got from Chandler and Cole while she was in the hospital. And then she put some Care Bear bandaids in my lunch bag right before I left the house, just in case I got an owie while I was at work. Today she made sure that Momma gave me one of her pretty necklaces.

Isaac is a sweet boy too. The other day before work, I kissed him absent-mindedly on the top of his head as he was going by on his horsie, by way of saying goodbye. But then when I left the house a few minutes later, Isaac was really upset because he hadn't had the chance to give me a hug before I left. We've been putting Isaac and Mina next to each other while they sleep, and Isaac snuggles right in next to Mina and puts his hand in her hair. We're trying to get them comfortable like that so they will start going to sleep on their own, especially after we move them into the back room. The other night he somehow bonked her in the nose with his head and gave her a bloody nose. Mina was very upset when she woke up, and there was a babysitter there while Keri and I went out to dinner. We ended up cutting short our evening, mostly because the whole ordeal had woken both kids up completely and we knew it would be tough to get them back down.

We're off to Camp Okizu this weekend, assuming everyone is healthy. Leaving mid-day Friday and coming back late Monday. We are really looking forward to it. We had such a great time last year and met some really nice people. Most of the people come back during the same weekend, so we're hoping to see some of the same faces again this year. I will definitely post next week and let you know how the kids enjoyed it.

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