Day +217: Ups and downs
Mina Brigitta has been feeling much better this week. She's been in really cute moods most days, enjoying playing, eating a little bit better, and being very cute with her brother. The other day she was very excited when Bubba woke up from his nap. Out of the blue she said "Yike (like) Bubba!" just like she does when she encounters something she really likes. She's been eating better, though still not like she was before she got the flu. Her weight was pretty steady at her Wednesday clinic appointment, which I took as a good sign given all the problems she's been having with her digestive system. Which seemed to be getting better as well, until she started having a little bit of diahrrea again on Thursday. They did prescribe amoxycillin at her Wednesday appointment out of a minor concern about a possible ear infection, so perhaps that's causing some more irritation in her bowels. Or maybe it's another bug; Isaac has also had some diahrrea, and Keri is feeling a bit under the weather as well. I'm looking forward to the day when a bug is just a bug for us.
The good news from her clinic appointment is that they dropped her cyclosporine down another notch, from 0.1 cc to 0.05 cc. That's the nasty, anti-rejection drug that she calls the "hot one". And they even started talking about when to take her off of it altogether. The other interesting thing Dr. Horn told us recently is that we're getting close to the point where we can stop worrying about "life-threatening" GVHD. Chronic GVHD can still pop up anytime, but it seems the longer it takes, the less likely it is to be severe.
Isaac is becoming such a little man these days. He's beginning to talk a lot, which has been funny because he's had a really hoarse voice the last couple of weeks. But he'll now repeat certain words back to you: Dada, Mama, Bubba. Can't get him to say "Sissy" yet. He also says "nana" for banana, "baa" for sheep, and "mah" for milk. And he does a panting sound for dog. It's funny, now when he cries, I have to listen more carefully to figure out whether it's him or Mina.
We had our first major rainstorm of the season this week, and after a day or so, we had a mouse in the kitchen and ants in the dining room, despite the fact that we live on the second floor. We're really glad this didn't happen a few months ago, and we're really hoping neither problem becomes chronic. I set out mousetraps, but haven't seen any sign of them in a couple of days.
The good news from her clinic appointment is that they dropped her cyclosporine down another notch, from 0.1 cc to 0.05 cc. That's the nasty, anti-rejection drug that she calls the "hot one". And they even started talking about when to take her off of it altogether. The other interesting thing Dr. Horn told us recently is that we're getting close to the point where we can stop worrying about "life-threatening" GVHD. Chronic GVHD can still pop up anytime, but it seems the longer it takes, the less likely it is to be severe.
Isaac is becoming such a little man these days. He's beginning to talk a lot, which has been funny because he's had a really hoarse voice the last couple of weeks. But he'll now repeat certain words back to you: Dada, Mama, Bubba. Can't get him to say "Sissy" yet. He also says "nana" for banana, "baa" for sheep, and "mah" for milk. And he does a panting sound for dog. It's funny, now when he cries, I have to listen more carefully to figure out whether it's him or Mina.
We had our first major rainstorm of the season this week, and after a day or so, we had a mouse in the kitchen and ants in the dining room, despite the fact that we live on the second floor. We're really glad this didn't happen a few months ago, and we're really hoping neither problem becomes chronic. I set out mousetraps, but haven't seen any sign of them in a couple of days.
posted by Arne Olson @ 11:39 PM
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