Mina Brigitta's Hospital Blog

Daily entries chronicling Mina Brigitta Mae Olson's battle with Acute Myelogenous Leukemia

Wednesday, January 26, 2005

Fevers gone, woohoo! New rash, d'oh!

Mina Brigitta's fever broke this afternoon. After five days of fevers between 100 and 104, she broke into a sweat during an early afternoon nap and woke up with a temperature of 97. No sign of fevers since.

Unfortunately, she has a new rash on her legs, mostly, and a little on her arms. Little red dots. We were terrified it was going to be chicken pox, but the dermatologist thinks it looks more like bug bites. We don't have bugs in our house (except for those pesky Argentine ants we can't get rid of), but she did play in the sand on Wednesday. Apparently there are biting bugs in normal playground sand, and the bites occasionally show up like this on immuno-suppressed people. They're going to watch it over the next few days to see if anything changes. We're relieved, of course, but still a bit worried.

The other news is that M-B will have surgery tomorrow for a Broviac cathether placement. They had planned to do it Saturday, but put it off because of her RSV. Now that it appears to be clearing up, they feel safe in proceeding with the surgery. This means no food or drink until they bring her in, which might not be until late afternoon. Ugh. Not that she's had much interest in food, but she's been drinking plenty of juice. She'll wake up cranky and sore. On top of all that, Auntie Teri's leaving tomorrow. It's going to be a downer of a day.


1 Comments:

  • At 8:25 AM PST, Blogger jenny in the falls said…

    I just copied from the Leukemia billboard...

    my son had purplish, red spots during his leukemia - i was told that they were actually the leukiemia cells collected under the skin - he has M5 type aml. they also could be piticia spots from her having low platelets or just the bug bites. about your new baby - i saw a special about a kid having fancomia animia (sp) and the new baby gave cord blood - my point is in the special the mom and dad and baby were allowed in with the kid having the transplant the entire time. it was at a hospital in minnisota. I would definately try to keep the baby in the room with mom if she's nursing - the baby would have the same immuntity as the mom so I wouldn't see why they would resist it.
    How to keep a toddler busy - a tough one - justin was 12 months to 20 months during his chemo - the docs used to say keep him in the room - we were at a hospital without an isolated cancer floor. I could not do it - he cried and cried so i would let him go to the playroom and i would carry my purrell and constantly be washing his hands and arms in the stuff. luckily in our 12 weeks there he caught rhinovirus just 1 time. hopefully with spring coming the germs would be as plentiful. if you are on an isolated floor you will have it easier because the kids there are not as likely to be "sick". we must have watched "finding nemo" everyday sometimes twice. Also i used the stroller to walk the halls - you get a lot of excercise and the kid loves to see the scenery (our hospital had murals of animals on the floor). when i was alone i could tie the iv pole to my jeans belt loop with a rope and push the stroller ahead of me. if you toddler is walking get a toddler leash (harness) and use it, that way they can't pull away and risk ripping the broviac central line. just some tips to try and help out.

    your family is in our thoughts. Jenny

     

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